Crucible of the Incurable: Facing ALS

Crucible of the Incurable explores how individuals and their support networks navigate life with amyotrophic lateral sclerosis (ALS), a 100% fatal neuromuscular disease with a typical progression of two to five years. Drawing on a year of research in clinics and among those living with ALS in the United States, the book examines the meaning of care, resilience, and meaning-making amid the disease’s certainty and uncertainty. It offers insights into how people adapt to and support each other through the challenges of this devastating diagnosis.