Mercies in Disguise

In "Mercies in Disguise," New York Times science reporter Gina Kolata chronicles the journey of the Baxley family in small-town South Carolina as they grapple with a devastating genetic illness. Central to the narrative is Amanda Baxley, who defies her family's wishes and chooses to undergo genetic testing to confront the fate dictated by a family mutation. As the family navigates unspeakable tragedy and the complexities of emerging science, they discover not only the origins of their affliction but also potential paths to alter their destinies. This compelling work of narrative nonfiction explores themes of resilience, choice, and the intersection of science and personal determination.